Posted by: craig and melissa | November 1, 2011

One Roarin’ Halloween

By: M.

Happy Halloween

Us: “Connor, what does a lion say?”
Connor: {whispering} “roar”

2010
Lobster

2009
Surprising Family that we had our own Pumpkin on the way

 

As our dear friend Kristin said, Connor moved up the food chain this year! We had a fun Halloween weekend taking Connor to his therapy center for their Halloween party, then the following evening we had a few friends over to carve pumpkins. Having three young boys in the house was fun, but also a reminder that we really are adults, hehe.

At the pumpkin patch a couple weeks ago


With his Physical Therapist, Suzie


There was a dog show that Connor loved!


Carving pumpkins with friends Saturday night


The boys played


The jungle animals posed nicely


“Wild One”


Family photo


Our front porch after all was said and done


Connor’s pumpkin is up top – we traced his hand to make a turkey.
Mine is an owl on the left and Craig’s is yoda on the right.

Hope you all had a spooktacular Halloween!!

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Posted by: craig and melissa | October 21, 2011

Peek-a-boo!

By: M.

Here’s some Friday fun for ya! Connor goofing around the other night – he did this again last night too 🙂 He’s such a goof – gotta love it!

 

Have a great weekend!!

Posted by: craig and melissa | October 19, 2011

WNW: Walking Shoes

By: M.

This has been an exciting week for Connor already! He’s been working hard at physical therapy every Monday and Wednesday, spending time each session working on walking with assistance. We’ve been experimenting with a walker there (called a Gait Trainer, if you want to look it up), and slowly taking away more and more support from it. There used to be abdominal support, a seat, and he faced the other direction (I know I have pics somewhere). His therapist, Suzie, felt that he was leaning forward too much for support, so she spun him around the other direction and now he stands up straighter while also giving him the feeling of independence. She also used to lock all the wheels so he could only go straight, because he had a tendency to push off his right foot (instead of moving that foot forward) and that would cause him to turn left/run into the walls. He’s gained so much control that she only locks the back wheels now so he can’t go backwards. I bet that will be taken away soon to see how he maneuvers out of places that he gets stuck in (since he needs our help to ‘reverse’ out with the locks in place). You will notice that she tried an abdominal binder on him this time to see how that worked out. It’s crazy to think back to a couple months ago and how exhausted he would get from taking that walker down one short hallway – which took a good 15 minutes. Now he can do 2 laps around the whole interior of the building in about 10 minutes.  Trust me, it’s a long walk for a little dude. I found out that 2 laps equals 400 feet.

On Monday Suzie found a walker that none of the other therapists have been using with their patients and let us take it home to borrow!! Connor LOVES it. I think he could walk around all day if I let him! Too bad our house is so small, but he has his route figured out! We were worried about him bumping into the walls/doorframes/furniture since it’s a metal frame, but he actually does really well steering. I’m so impressed! Here are some pics I snapped yesterday of him getting around the house:

And here are a couple videos from Monday.  The first video is a little longer (4 mins), but I had to capture it all (especially for those Grandparents/Aunts/Uncles/Cousins out there)! It worked out great that Craig had that day off so he was able to join us in the fun – Connor is constantly showing improvement every time we show up to therapy! Now that I know I can embed videos into the blog, I’ll surely be doing that more often (if you don’t know what that means Great Aunts, don’t worry about it)!! 🙂 hehe Just enjoy the videos!! You’ll see at one point he stops in front of the Administrative office, where a few ladies are always working – they just love him up (along with everyone else in that building… aaaaand anywhere we go really). He’s such a flirt and remembers where everybody is to pay a visit to 🙂

GO CONNOR GO!!!

Posted by: craig and melissa | October 16, 2011

Columbus Day Hike

By: M.

This past Monday we went for a nice family hike. We drove only about 30 minutes north of us to an area called Pike Lake, part of the Kettle Moraine State Forest. It was a gorgeous day and felt great to get outside to enjoy the beautiful not-so-fall weather once more. Although, now I think Fall has finally arrived. Here’s a little slideshow I put together with some pics that Craig took along the way. Enjoy!

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Posted by: craig and melissa | September 29, 2011

Sawyer

By: M.

Today we are thinking & praying for little Sawyer, a fellow Prune Belly kiddo. It’s an exciting day for Sawyer and his parents, as he’s getting a kidney transplant from someone who loves him more than words can say… his daddy. I’m sure it’d be every parent’s dream to give their child a vital organ for survival if they could! Thankfully his dad, Matt, is a match!

Sawyer’s mom, Ashley, had discovered our blog shortly after Connor was born and we’ve been following them closely ever since.  After all we have quite a few things in common; besides having boys of a similar age with prune belly (Sawyer’s 5 weeks older) – they are also big Steelers fans (for living in Mississippi, we were pleasantly surprised), they have the same carseat/stroller combo (that I’ve only seen 2 other times), and also got married in 2007 – but on June 2nd, which just happens to be Connor’s birthday. Through it all they’ve also remained positive and trusting in God’s plan.

Even with all these similarities, their little guy has had quite a different road than Connor.  He’s been on dialysis most of his life for 12-14 hours each evening. He had both kidneys removed recently in preparation for this surgery. They’ve had to travel 4 hours to Birmingham, AL for their major appts. He’s had plenty of scares of vocal cord paralysis. But it’s so easy for us to relate to them. We’ve been so fortunate that Connor’s single kidney has been ‘okay’ but we’re unsure of what the future may hold for him. As a mother, I pray for Ashley today as the two loves of her life are both having surgery simultaneously. I can’t imagine the mix of emotions they’re all going through. But what an exciting future they should have with a fully functioning kidney – hopefully he’ll even get his feeding tube taken out (kids with kidney disease often have low appetites). And an end to dialysis – I can’t begin even imagine how their lives will change for the better! Most importantly, knowing your child is healthier. So far updates show that all is going well and as planned. Continued prayers sent their way today, as they all move forward, and while the boys heal. Feel free to swing by their blog to follow along: http://thedykmanfamily.blogspot.com/ 

Posted by: craig and melissa | September 28, 2011

WNW: books

By: M.

Connor has been VERY into his books lately!  He’d rather crawl over to one of his bins full of books than play with toys. We love it!

He has a stash in the living room…

And in his bedroom…
(this top pic was before we moved the pack n play in there)

Hey, nice choice Connor 😉

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